Wednesday, October 10, 2018


WELL THINGS ARE GOING WELL, BUT IT MAY BE THE END OF THE MONTH BEFORE I RETURN

The review and process.  I am dealing with two separate diseases.  Anyone so inclined to google it can google hypothalamic dysfunction and spinal cord injury.  The Fellow (specialist in training is no longer working with me.  He is not even licensed and already suffers from God syndrome.)  It is sad because he is getting some of the best training in complex spinal surgery will be fail because patients are always wrong.  Well the other doctors agreed he was being impossible so he no longer sees me.

WHY DO I WRITE ABOUT THIS?

People with this rare condition do research and find very little.  They will find this post and then be guided.  This is why I write about it.  It is not about me.  Also you may be in an impossible situation where your doctors do not understand what to do, and you need to know to keep and researching.  There is an answer.  It is just rare and doctors do not know about it.  People need to know to not give up. 

I have no mobility in my small intestine which is right under the duodenum.  It is caused by the hypothalamic dysfunction.  All of the stool softeners will not make the muscles work.  The stool is not hard.  There is no functioning muscle to move the stool.  The last enema which served no purpose other than feeding his ego was the last.  I have not seen him since.

So long as they do not give me a medicine to improve motility nothing will move and I will end up with blockage which could result in another surgery.  I think tomorrow' second physical therapy session will be the last to naturally stimulate the muscle and then they will go to a medicine.

This is all outside normal recovery.  I am maybe one in a million with the combination problem.  So doctors do not know about it so you have to press them until they surrender and go into the NIH page wherein they then proceed according to protocol.

I am on hold until all problems are fixed.  I am not ambulatory without the walker.  I am on hold.


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